elainegrey: Inspired by Grypping/gripping beast styles from Nordic cultures (Default)
Sunday, October 15th, 2023 02:02 pm
Last Monday i made a highly satisfactory loaf of buckwheat blender bread. I added rehydrated and blended dried figs from 2022 as part of the liquid, that worked fairly well but the previous loaf with chunks of dried figs and dates held promise.

This loaf included one packet of dated-2015 quick yeast. Maybe that helped a little with the fermentation. I also think i did a better job getting the oven warm enough to support fermentation without overwarming. The first rise of the batter went well, and the second in the pan filled up the pullman pan. The loaf is very moist and probably could have benefited from true baking instead of convection bake: it sank a little in cooling.

Roasted sprouted groats in pan; buckwheat blender bread loaf below


I continue to be happy with my toasted buckwheat groats as cereal.

This weekend i made barley out of well soaked and just barely sprouting grain. It's going to be a pleasant preparation for grain bowls, and i can imagine dressing in a minty chimichurri would be divine. I spent some time reading and discerned the easy to get pearled barley is the "highly processed" choice. You can get hulled barley, where the barley is processed to remove the hull, or there is hulless barley -- which come from a number of selections where the grain falls out and threshing and doesn't need to be processed. There's some black and purple versions with various stories behind them. My guess is that like corn and other grasses, the color genes are there to be selected and stewarded in multiple cases. I'm imagining growing a hulless barley someday. Let's get the sorghum seed grown fro dried flower arrangement, first.

The week was disjoint and frustrating with internet outage, an attempt to get a blood panel done that failed due to overworked doctor failing to give good instructions and put through the lab order, and general malaise. I took much of Thursday and all Friday off. I realized that with the nasal surgery, i wouldn't be able to distinguish between a head-cold and a sinus infection. A tele-visit concurred that i probably had a sinus infection, so i have antibiotics and an increase in the asthma meds to help me perk back up.

We have a couch from "Rooms to Go" which is probably a better quality than Ikea, but not by much. We've been using it very regularly for six and a half years, so it's been a bit worn out. I've been thinking about how to improve it. The springs are a little tired, so i've found seating slats that can distribute weight more across the springs. We've installed those: a clear win. I've bought foam to replace the seat and back cushions: that's in progress. I am uncertain about how satisfactory my plans for the back are. It's lines are not well matched to most current slipcovers, so that took a long time to sort out. I believe i have found some adequate solutions in grey. And i bought some spiral upholstery pins that may assist with keeping things from going too askew. So far it looks sloppy and terrible, and i have Internal JudgyJudgyJudgy Voice going on, I'm trying to remind myself that it's not done yet. But, wow, am i self critical.

Friday i met my sister and Dad and we went through some of Mom's jewelry and some of Dad's things. There were pieces that told stories about family: tie pins from one of my Dad's employers and pins and charms from my grandmother's long service with Ma Bell. Pins my grandfather gave my grandmother to show he was a submariner and a similar pin from my SeaBee father to my mother. My parents' wedding rings. Instead of trying to split those up, we decided to pool them and have them all mounted and framed together as a family history. Someday maybe the nephews and nieces will split it, or maybe one will have become the clear family historian.

My Dad apparently was left a little down by it, and i had mixed feelings too. Missing my brother a little, but also the -- frustration and judgement i feel about his family and their sense of care of things felt heavy.

I will try this week to post more often, and more briefly. We'll see! My follow through on self commitments is not what i would like, lately.
elainegrey: Inspired by Grypping/gripping beast styles from Nordic cultures (Default)
Sunday, July 2nd, 2023 10:17 am
Dad called this morning to say

1. His sweetie is coming over on the fourth to grill and cook for him;
2. He really doesn't know what is going on in the relationship (repeated multiple times), but that's why he has a therapist; and
3. discuss the mom's planning calendar i have for Christine's and my wedding.

I think he thought the calendar had more personal content. It may have at one time, and she purged it. Not sure why pages are missing although i assume they may have been empty?

All he recalled was that i was busy with my first year of graduate school and annoyed by all the planning.

It turns out i'd left piles of files out from yesterday, so while we were talking i sorted through and finally found the letter from me Mom mentioned. The ultimatum was that

* she call Christine to discuss details of the wedding and if they couldn't agree i would be willing to get involved
or
* she just plan the big party for family in Florida (where my parents and siblings were living at the time), and Christine and i would handle a small simple wedding in Raleigh.

The fact that this worked up to an "ultimatum" is impressive, and it lays the whole ground work for Mom not communicating with Christine and general bad mother-in-law behavior.

I really did not care about wedding details. I did care about not enforcing archaic gendered patterns in the wedding, and i really didn't want to be dressed up like a doll. I suspect that did not fit with her vision of planning a wedding and did not fit with how i was supposed to behave.

--== ∞ ==--

So, i went through a box, and this box was all about me. My letters, clippings of school honors, etc. I purged generic ephemera. Then i went through a fat hanging folder full of "birthday" cards, and i purged basically generic cards.

I did find a treasure, a letter Mom's mother wrote to my great grandmother - her mother, as the birthday cards were more of a mix of various cards including some she's sent her mom and other things of her mom's. I am happily envisioning how i can create a book for the family around the happy memories of Mom as a book of days, and that letter should go in a "Mother's Day" section.

I was surprised to see how many letters i wrote to my family in the early 90s, but it was that or telephone. I know there were many people i corresponded with at the time, all the journalling energy going to letter writing.

I then went and found my journal from the year before i got married (context, i was in Philly and Christine in North Carolina and my parents and sibs in Florida) and was reminded how depressed i was, how i turned to some people for comfort, and i am ... not sure anyone needs to ever read about that? Here, thirty plus years later, i know there was a thing in my youth about a need for physical intimacy that had something to do with the absolute ache i had for maternal caring that was tangled up with usual teen and young adult desires, but has in my memory a dissociated quality.

--== ∞ ==--

So, i spent a day and tidied papers but -- Why? I am glad for some of the discoveries i made, but i need to discuss with siblings and Dad and ... maybe a NC archivist?

1. I know family history at the genealogy level is important to pull out
2. I suspect my siblings and Dad wouldn't mind a time line of shared family details
3. I know my brother has privacy concerns about some things
4. I know my sister would treasure well curated keepsakes but has learned to not hold on to Stuff
5. We all have some curiosity about Mom's distress and would love to know WHY, but i assume that we generally just have her searching.

And then, honestly, who will care about my journals, etc? I hadn't really thought about my papers, but this intersection of mom's papers _about_ me just underscores *my* piles of papers. But, before i start serious purging, i should find out what the NC State Archives wants (https://archives.ncdcr.gov/researchers/collections/private-collections).

I am assuming that purging mass produced ephemera (travel brochures, magazines, whole newspaper sections) is no big deal when there is very little context. I'm noting things i'm purging in some context, but the "Parade" magazine insert with the "best of 1986" -- the year i graduated high school -- seems like something that can be found elsewhere. Or brochures from schools i applied to.
elainegrey: Inspired by Grypping/gripping beast styles from Nordic cultures (Default)
Saturday, July 1st, 2023 11:37 am
From a chat thread with my siblings and father, just archiving:
Read more... )
elainegrey: Inspired by Grypping/gripping beast styles from Nordic cultures (Default)
Thursday, June 1st, 2023 06:59 pm
The gloomy weather has had a few windows of dryness and brightness such that some mowing occurred and lunch in the yard went well today. (More later). But i just scampered in because of a downpour and was able to greet a sopping Christine and Carrie with a towel.

It's intriguing how a bright sunny day in March produces as much solar power as a mostly cloudy day in June.

Today is the anniversary of Mom's passing one year ago and Christine's father's passing twenty two years ago. Read more... )

--== ∞ ==--

On Tuesday i had a happy conversation with the yoga instructor from this January. It sounds like we will have a good fit. Financially and scheduling-wise, i think this will work out well. I have paused the CoPilot app, expecting that i will cancel. We'll see! I've transitioned two of the routines from CoPilot to an app called "Seconds Pro" and have added some breathing routines there, too. It occurs to me that i will have more flexibility in what i do, too. If i want to fiddle with some other program on a whim -- like the 5 min yoga stretching program i just saw linked off of someone else's practice -- i can, without making arrangements to adjust the CoPilot accountability tool. I have my own records, so there's that.
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Friday, September 9th, 2022 07:23 pm
Much going on. Mom's birthday was on Wednesday, and I went out with my sister, her son, and my Dad, returning with them to home and a condolence cheesecake that i had saved to share, as cheesecake was my mom's favorite (or what my dad thought of as my mom's favorite).

Thursday i found much work from Tuesday and Wednesday was lost. I was in a bit of a funk. Then the Queen died, triggering what i think was displaced grief. And then Christine was triggered and went a little porcupine. I made the mistake of trying to be an advisor and triggered her more.

Lately i've reflected on how judged she felt by my parents, ruminating ... )i am not her therapist. I know she works -- and progresses -- at being better with being in the world. I can focus on being my own therapist.

I didn't hit my 7k steps Wednesday or Thursday, inhibited by the muggy miserable weather, plus stuff. I didn't walk today because it was ALL MEETINGS. I did walk a bit after work and vaccine and visiting Dad with Christine and Carrie, but still didn't get to 7k.

I've gotten my flu shot and one of the new bivalent COVID vaccines, just in time for it to come to full strength before i go to the office in Ohio for a week.

We've also gone through another round of vehicle shopping and will be replacing our 24 year old Ranger truck with a 12 year old Jeep Grand Cherokee, picking up the vehicle later this morning.

--== ∞ ==--

Since Tuesday i have been obsessing over sauce recipes. I read through a copycat Heinz 57 from scratch recipe which called for tomato paste, ketchup, Worcestershire sauce, and Dijon mustard. I then looked up how to make ketchup, Worcestershire sauce, and dijon mustard from scratch. There were MANY overlaps in ingredients. I had known about tamarind and anchovies in Worcestershire sauce (also in the Heinz 57 recipe). Ketchup apparently needs a touch of celery seed. The copycat Heinz 57 sauce recipe, ketchup, and Worcestershire sauce all called for mustard powder, so the addition of Dijon to the copycat recipe stood out.

I've imagined what ingredients we have locally that i could use. For spices, magnolia flowers have a ginger-cardamon note. The Carolina allspice has spice and citrus notes. The figs. Fennel instead of celery seed, maybe coriander. The cayenne pepper has miraculously stretched above the weeds and is setting fruit. I've got the walking onions. I imagine when the sumac is mature enough to set fruit and i can use its berries for the citrusy tart spice.

I figure a mushroom can contribute umami to a sauce, because sardines and anchovies are not staples in this household, and i can't imagine using them all up. I note after a little research that anchovy paste is a thing and conceivably lasts forever in its tube.

Friday I made a wonderful sauce that falls in the "steak sauce" family, but no tomato. Reminiscent of Worcestershire but thicker, like ketchup and mustard. Many very ripe figs, a dried mushroom, a wedge of preserved lime, fermented ginger, pickled red onion, cider vinegar, molasses, liquid smoke, mustard, red pepper flakes, and black pepper. I only measured the mustard, the rest was what seemed reasonable at the moment. I think the fig+preserved lime create tamarind-like notes. The preserved lime and fermented ginger had much salt. The pickled onions had clove and cinnamon maybe: i think i added spices to the brine. The trick of letting the mustard powder and water blend sit for a while to develop mustard heat before fixing the heat with vinegar really added a punch.

I think this could be a fun skill to develop.

Here's a weird document -- is it from an AI? https://eatdelights.com/anchovy-paste-shelf-life/ It claims that sweet anchovy paste is used in buttercream frosting?
elainegrey: Inspired by Grypping/gripping beast styles from Nordic cultures (Default)
Thursday, June 23rd, 2022 07:23 am
Yay, oral prednisone prescription to fight the asthma. The weather has been so mild and i have been so lethargic. I have a mild cranky for a might-have-been if i'd had the steroids two weeks ago. Whatever.

It's been 13 hours since the first dose, and Christine notices the cough is decreasing. I had a brief fling with feeling energized and optimistic earlier today -- oh, please, bring on the side effect of "inappropriate happiness"! It has waned.

Lessons learned from this asthma bout: go to the rescue inhaler ASAP and see about beating back the lung irritation early. Also, double dose of inhaled steroid ASAP. I don't want another long bout of coughing and exhaustion again.

Is the CPAP helping? How could i tell? I currently ascribe most of my energy and aspect to the asthma flare. Is grief mixed in? Maybe?

--== ∞ ==--

My mind passes to my parents 50th wedding anniversary and the challenge of drafting a message that was honest but also sounded positive. I'm happy to have resolved the anger and pain years ago. I can find the pain if i look for it, but -- especially with a frame of understanding of her struggling with ADHD -- i have more compassion for her. Christine even says she has found more compassion for Mom.

I think of the person my mother has been with the dementia, the change before the stroke had already eroded so much. Yet seeing Mom stripped by the stroke and dementia of the anxiety and anger and bitterness and laughing and smiling was a gift.

--== ∞ ==--

We fiddled with our land line today [Wednesday]. It turns out the digital phone + answering machine gadget was misbehaving on the line, preventing us from successfully answering calls (resulting in incessant ringing) and killing the dial tone. I was happy we did figure out it was our issue before engaging to much with CenturyLink. So, do we get a new phone? Are landlines silly? My sister has gotten StarLink and has incredible speeds. I don't think we have a clear enough sky view, and i don't want to cut down trees, necessarily. There's an app that has you scan the sky with your smart phone camera, and it wasn't happy with the sky views i had. Doing the check from the roof would be the next step, but i do have mixed feelings about starlink. Will our roadside ever be ripped up to deliver fiber?

--== ∞ ==--

After experiments with smashed cucumber, i tried English cucumber unsmashed, and unsmashed and drained. Then unsmashed and drained was with a scant handful of blueberries and chiffonade of spearmint and anise hyssop. Draining cucumbers does make a difference, i think: dressing them with a little salt (and perhaps sugar) and letting that pull liquid out leaves a slightly more cucumbery cucumber. I'm not sure the smashing does anything for me, but i didn't try the cubes with dressing.
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Thursday, June 2nd, 2022 09:34 am
Mom passed June 1st at 11:25.(This is twenty-one years after Christine's father passed away on the same day. Christine refers to it as the universe rhyming.) My sister was with her. She had brushed Mom's hair and washed her face, and was listening to John Denver's "Sunshine on My Shoulder" when Marie's breathing slowed, slowed, and then gently stopped. She had called Dad and i, but it was over very quickly. I arrived soon after. (And i lie to facebook and say Dad did too, but he did not)

Christine had dropped me off, and then came in. What could she do? I gathered a few things we wouldn't need including the empty mason jar we'd given Dad vodka in. She said she'd go get him some more. We pinged my brother N-- and fifteen minutes later he responded. His trans pacific flight had landed and he was getting his luggage at SFO before transitioning to his interstate flights. We were able to tell him about thirty minutes after Mom passed.

L's husband T-- showed up soon and was comforting L-- when Christine returned with vodka, a bottle of Absolut with Swedish water and winter wheat in honor of my mother for my Dad and a lovely Japanese vodka for L & T (and Grey Goose for our household, which will last forever because i won't use it to make extracts).

Christine and T left before Dad arrived. T would go collect all the guns at the ranch and Christine handled finding them a place to be kept. I didn't think of it, and i don't think it was necessary, but i approved on the principle that if Dad would be upset by it, it was the right thing to do, and if he didn't mind, then shrug, no harm. Most are rifles and shotguns, handed down through the family. (My brother, after hearing my sister and i relate this, noted that it seemed he would not need to debate with any of us over which guns he wanted.)

When Dad arrived we left him with Mom and went to the patio where L called Mom's brother, and I called her sister (my namesake).

Then there was the long afternoon sitting with Mom's body and Dad. At first, we thought we could bring my brother there to the hospice, but his arrival was too late for the body to be removed in the window allowed. I drove Dad to his home, and my sister picked me up around 6:30. Dad had consumed about half of the vodka.

A few hours later she picked me up so we could meet my brother at the airport after the 11 pm flight arrival. We returned him to my father who had only a little bit more of the vodka and seemed to be doing OK.

Mom's sister was going to take Amtrak up here, but instead went to the emergency room with a fairly concerning symptom. We don't have news. Her husband had been in the hospital through Tuesday for surgery for a kidney stone, so that's not easy either. Mom would want me to take care of Judy: i ponder what to do. ... so i tracked down her details (about the same time my sister could relay the details from a family member in Florida) and i had a short chat. Sounds like nothing horrible is happening.

Later, nothing horrible but some concerning issues with my aunt.

Mid-day i was distressed i couldn't find my inhaler and purse. Had my sister check her car, and eventually checked my Dad's place. After my mid-day outing i found it, "Found the purse & within the inhaler. It was near where I have to shut the garage lights off. I found it because the garage lights were still on. ADHD distraction for the win."

Because i was going to look for the purse, i drove my mom's cousin to my dad's place. All was lovely until complained about the large campaign signs for sheriff (up since last winter for an election in the coming November). He mentioned their governor's campaign and their hero Ron DeSantis. "I don't know your opinion of DeSantis," he said. Really? You can't guess? I was polite as possible saying people in the state get to judge their governor. I have to say the witholding funding from schools that had masking covid policies was what first came to mind and not the Don't Say Gay bill, but i DO have STRONG opinions about that man. That put me in a funk, too.

When i got home i got a text from my manager, checking in. I shared my news; he inquired if he should cancel the 14 June summit in Ohio. Oh, so, we do have a plan to meet in Ohio. So there's that. I said no: i think i'll be doing OK, and my brother is here with my dad. Later, my Dad will be alone (and i wonder when the rhinoplasty will be).

I spent over an hour looking at bulbs.
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Tuesday, May 31st, 2022 10:09 pm
I spent most of Monday with Mom, leaving for lunch and after dinner.

Tuesday my sister spent much of the time. I stayed with Mom while Dad went to "his" bar for a beer. He didn't stay long.

Wednesday i'll show up about lunch time and then stay until my sister brings my brother from his flight that lands at 11 pm. Assuming all is calm, i'll attend my ADHD mindfulness class.

I was a little out of sorts Tuesday: one likely cause is a exchange i had with Dad Monday that did not sit easy. Dad has his charms but he can also be terribly thoughtless.

I'm surprised by -- and worried about -- and thankful for -- how stable Mom is. She seems likely to make it past my brother and her sister's arrival. Random Internet Page says that terminally ill people using little energy can last weeks without water and food.

Christine and i pondered a little the people living to just after the arrival of someone special, and her ache that her mother died before she could make it to her bedside.

Dad has talked about how amazing the medical understanding at this time is. Having the technical ability to scan someone's brain and understand how the bleeding is related to the rest of the brain and be able to make a prognosis is truly amazing. Not so long ago, we might have been at her bedside not knowing if she was going to wake up or not? And in the not knowing, possibly having more invasive interventions that would turn out futile. Having the certainty the scans bring -- i looked at the imagery last night -- allows us to gather as we are. My aunt was sharing her memories of her father's death and the not-knowing.

Christine's sister visited with Dad and I, then Laura and Elsa, and told Christine she could see how much more affected Laura is than I. I've wondered how affected i would be at Mom's death, since the stroke, as i observed my emotional detachment. As the dementia and stroke have taken away her anxiety and a large amount of her anger, i have had a sorrow in seeing the mother i could have had, in seeing the woman my Dad loved all those years. He speaks of how happy they've been the past three years with a sort of guilty thankfulness for the happiness that came at such an apparently high cost to Mom. This morning, as i recited my centering guided meditation, i came to tears.

I have not invited my mother to join me in my meditation the way i invited my grandmother. And ... do i want to? Who is my mother? The gentle sweetness of these past years? (As long as you weren't asking her to put on her brace or do her exercises or use the toilet?) The person spreading toxic bitterness generated by the debilitating anxiety and inner turmoil? (I learned a water meditation to be with Mom for some years, letting her "talk" to me while i drank water and visualized the water flushing all the toxins from my system.)

I introduced my mother to labyrinth walking meditations: maybe that is where to look for her in the future. And i can bring one of the palm sized engraved labyrinths to have with me tonight. I haven't had to protect myself from Mom for years and years. I've wondered how much was the trauma therapy and how much was her dementia beginning. (Distance helped, although when Christine transitioned distance was not sufficient to protect us.) I can trust, though, that i can continue to be protected from the toxicity while remaining open to the gentle sweetness.

[Do i believe in spiritual visitations of deceased family members? I don't think it matters. I don't particularly believe individuals keep individuality after death instead of becoming part of the Whole That Is, but i'm not particularly invested in a belief one way or the other. My father has had intense and ongoing experiences of visitation, and his mother had vivid experiences as well. I am very open to the experiences and don't feel the need to have a belief or explanation for them. It is meaningful for me to examine whether i am open to visitation from my mother, whether memory or spirit. I believe i have control over the openness, but not control over the experience if it is allowed, thus my ponderings.]
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Monday, May 30th, 2022 10:11 am
Time line, because there are lots of who knew what when sorts of details that i want to be able to assure myself of in the future. Anyhow, way much detail --spending one day recording the previous day.

Dad has told his cousin C--, his sister C--, their neighbors. He plans to tell the minister tomorrow (although maybe he's changed his mind).

Cut for overwhelming detail )
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Monday, May 30th, 2022 09:51 am
Posted to a small group of Christine's and my local friends (CChat) 8 pm Sunday:

Mom's condition makes brain bleeds likely, and she has had several large bleeds. There is nothing that can be done but make her as comfortable as possible . Shes been moved to the UNC Hospice facility in Pittsboro . My sister and I will be splitting time being with her until she passes. My brother is coming from Singapore Wed night.


Written for you all after that:

I am at hospice waiting for my sister who wants to stay tonight. I will be back in the morning, Dad will come early and spend their usual special time together.

She is sleeping right now, occasionally having an arm tremor despite plenty of anti seizure (ativan) meds. I don't think she's going to wake. My brother arrives Wednesday night; I don't know what he will find. She has a "Do not intubate" order, sparing all of us a choice.

Dad was bemoaning that he should have been prepared for this day. I noted that he and she WERE prepared. They had their advance directives. They had the DNR & DNI recorded So no anguished decisions

My hope is ... Oh it is so hard to hope. If she survives a week she could have a long drawn out final... who knows? As her brain swells she will get "worse," and the maximum inflammation is at the 5 to 7 day point. So... my brother arrives late on the 4th day.


To an extended family chat:
09:10 L-- spent the night with Mom, Dad came early in the morning and drank coffee with Mom. I walked in the yard this morning and picked some roses. Christine came in with me this morning, and we visited with Dad for a while. Dad's gone home and will be back this afternoon to spend the night here.

09:14 Dad had brought Mom a gardenia, hoping the perfume will comfort her. I'm sitting with her now, listening to her breathe through her mouth, regularly and shallowly. She's been asleep, for lack of a better term, since yesterday afternoon, when Laura and I saw the pain pass over her face as she had seizures, her arms and legs trembling. They're medicating to prevent those.


09:22 I just talked to the nurse. She's going to give Mom some morphine as that will also relax the airways and may make the breathing much more relaxed.



09:37 to the CChat friends:
I've been prepared for this and while it is hard watching my dad feel so much loss, Mom's dementia had progressed a good deal over the past few months. We had begun discussing admitting her to a memory care unit which would have been so hard for her. She and Dad had so much time together these past years, filled with love -- and Mom laughing at Dad's jokes — there is much for me to hold to ease the ache.


09:57 breath every 2.7 sec.
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Tuesday, May 24th, 2022 10:09 pm
08:17 i had hoped to wake to a rescue inhaler prescription but no go. I took much of yesterday off because i felt exhausted & enveloped in brain fog. I didn't help Dad make it to the monthly support group because of that, plus a power outage at his house and Mom's distress in bad weather.

We are beginning to talk about Mom going into care in a Memory unit. I know that will mean More out of me, doing my share of visiting with her. I find the thought of helping Dad move daunting. I've boxes of papers from Mom and Grandmámá stacked around.

We really need to work on the garage conversion. It feels like a horse shoe nail: getting that space and storage to bring ease elsewhere.

I observe i am borrowing exhaustion from the future when i have plenty for the moment.

In really good news, the APAP should be here tomorrow night. YAY.

22:10 I got a rescue inhaler. There was too much headache and, because you have to manage your own healthcare, i asked for what had been proscribed in the past which is now a high copay drug. I wish i had looked at the formulary and found the current preferred drug. Oh well, i've been able to take two doses today, and i am going to continue taking max doses until my energy gets back. The thought of the rigamarole to get a doctor's appointment for prednisone if this were to get worse makes me sad.

The Phillies don't seem like they're going to beat the Braves (boo, hiss). The Orioles and Yankees are tied in the tenth inning: I hope the Orioles win.
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Sunday, February 6th, 2022 06:49 am
As part of marking my new year, i am trying to record the mundane day to day aspects of my life. The larger arc doesn't change much. Big personal changes recently included our move to NC in mid 2016, Mom's stroke in late 2018, and my ceasing engagement with a (Quaker) Monthly Meeting in mid 2021.

--== ∞ ==--

I'm in my mid fifties, and have been married to Christine for over thirty years. She and i met in high school and married after college. I understood who she knew she was before we married: it took many years for her to be in a position where she was ready for expressing her true gender to everyone. She changed her name and gender markers in the early 2000s.

I attended college in North Carolina, graduate school in physics at the University of Pennsylvania. My long tenure as a graduate student was because i was also taking a life class in major depression. I eventually set a deadline for myself, got pneumonia that set me back and mde me miss my deadline. I took a job as a systems administrator for the Franklin Institute, and then, in 2000, and old friend recruited me for a job in San Francisco. In 2000, a non-profit had no chance of hiring technical staff in San Francisco as everyone chased the dot com boom. From our archive nonprofit, we watched the bust. Churn at that non-profit led me to a job at a non-profit that works for libraries, museums and archives. In 2006 that non-profit (the minnow) merged with a much larger but quite similar non-profit (the whale).

After some extremely stressful years, the management at The Whale became more stable for the technical teams. I moved from management to technical and systems architecture, and am very happy with my work in authentication and authorization systems.

In 2016 we left the Bay area -- the rising rents and the droughts -- and moved back to North Carolina. My family knew my mother's mind was declining: in late 2018 she had a massive stroke just days after receiving a diagnosis of Cerebral amyloid angiopathy, a condition in which proteins build up on the walls of the arteries in the brain. CAA increases the risk for stroke caused by bleeding and for dementia. My father became my mother's primary carer. While the prognosis was clear to me in the days after the stroke, it took several years for my father to understand that not only was my mother not going to "get over" the stroke, but that she was actually going to continue to decline. In mid 2021 he hired help, B--, a woman he met when she was tending bar at one of his pre-COVID hangouts.

My sister L-- lives nearby with her husband T--, and teen children W-- and E--. She quit her job in late 2019 for several reasons, one of which included spending more time caring for our Mom. My brother N-- lives in Singapore with his wife M--, and his teen boys Z-- and D-- and youngest daughter S---.

I was active in different Quaker monthly meetings over the past 20 years. The meeting i began attending in North Carolina I felt led to join as a stretch. It was not the large university or urban meeting, it came from a different branch of Friends. I felt comfortable and welcomed, but it took a long time for me to realize the meeting's understanding of Quakerism is rather different than mine. In mid 2021, i left the meeting informally, and currently am pursuing my spiritual leadings in a solitary way. I had engaged in Friends' community for the practice of community: i feel that bringing what i have learned to the community that is my family is where i should be at this time.

My engagement with photography and yarn craft has fallen by the side as i now passionately engaged in co-creating a sustainable, more ecologically balanced environment on our four acre lot. "Yard work" and "gardening" mean so many things to me, and they feed my energy.
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Thursday, February 3rd, 2022 07:07 am
In good news, Grandmámá changed her mind about coming to NC. In bad news, when i was doing a transfer of Mom yesterday i may have let her stroke-damaged (not exactly paralyzed) arm get damaged. My sister will be making a decision later today to get Mom an x-ray.

--== ∞ ==--

2022-01-31 M: I'm taking Mom's papers as my sister tries to lighten the household load. I've created a relational database in which i can track the documents, events, ideas. I'm thinking a great deal about the emotional labor Mom supplied for the family,. On Sunday morning Christine watched "American Masters | Amy Tan: Unintended Memoir." Amy Tan's sharing of her relationship with her mother and how much of Amy Tan's writing came about through working through her feelings and reflections about her family history resonates with the actions i am beginning. We are not at a point in our relationship where i can show my mother i understand her, unlike how Amy Tan's relationship with her mother drover Amy Tan's writing. What struck me most was Amy Tan's assertion in the documentary about her being a boomer searching through her history. And that reminded much more of my mother and how my mother accumulated family history and documents, read history, and collected and archived information. Did Mom wanted or need some anchoring? Or was it part of her unending quest to fix herself?


When it comes to understanding Mom, the lens of ADHD offers so much more revelation than years and years of reflection. Admittedly, I was happy to let Mom's brokenness be Mom's mystery: my goal was to help myself and i knew helping Mom was out of my ability.

--== ∞ ==--

2022-02-03 H: I have a couple banker's boxes of files in the car to bring in, along with a file crate. I'm wondering about a creating a book of days -- she always collected quotations and meditations; she observed holidays and the change of seasons; she fixed the same special but simple meals for St Patrick's Day, Halloween, Valentines'd Day; and she kept up with birthdays and other changes in people's lives.


I ponder -- if i ever finish the tea towels i have stashed to make -- whether making tea towels that celebrate her memory -- with her quotations and pictures, or a collage of her saved clippinga about Sweden at Christmas, at Midsummer might be meaningful.
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Tuesday, February 1st, 2022 05:55 pm
My heart breaks. Dad is in Florida with his mother, who celebrated her 105th birthday today. She has said no, she is NOT moving up to North Carolina to live with him. (This creates a storm of complications for us in finding a carer we trust to be with her.) He is depressed because of the rejection, the complications, and the fact she is barely eating and is just shrinking and fading away.

On a video call he shares this with my mother and I. "You are so good to do so much for her but you need to come home." Dad denies doing "so much" because there isn't that much physically significant work to do. "You need to come home." "I need you." "I am waiting for you to come home." Mom's impatience and anger comes through. Seven more days, six more nights.
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Wednesday, January 19th, 2022 08:36 am


I'm feeling a little dislocated in time and task. I got some things i was procrastinating (retreat prep) on underway, but others remain. I feel guilt on the retreat prep: not enough outreach, and now it's a month away.

The "snow fall" -- really accumulated sleet -- lingers around our house. We're on a north slope, with tall pines to our south: passive air conditioning, i joke. In the early spring, when others have flowers, i remind myself that i appreciate it in July and August. Because Christine loves snow, i am happy it lingers here. I suspect today's rain will wash the remaining bits away before the new accumulation occurs.

Best moment - i was in the yard with Carrie under a cloudy moon when i felt like a spotlight was cast upon me. The clouds cleared and the full moon on the snow was so very bright.

There's going to be a bit of below freezing weather, and all the greens that haven't died or been eaten by rabbits, i've brought in. I just ordered rabbit fencing. I want to plant my seeds, but know it will all be mown down by the critters. I heaped the pine straw around half of the fava bean plants (to see if it makes a difference). I piled some more on where the dahlias are and the lemon grass. I don't think the lemon grass will make it. The dahlias -- maybe? I can't remember if they survived the severe winter in 2017-18. The other winters since we moved here have been mild.

https://mrcc.purdue.edu/AWSSI/chart.html?stn=RDUthr

(For US locations, this average winter severity calculation is a nice way to visualize winter weather effects. See also https://mrcc.purdue.edu/research/awssi/indexAwssi.jsp)

MLK day: went to a zoom workshop on voting rights

Tuesday: took Mom to the Nasher Art Museum to get her out from under all the construction going on (new flooring in the first floor bedrooms at M&D's house, easier to clean and roll a wheel chair on). It's the first time she and i have been out together, just us, since her stroke. The accursed pandemic has kept her so bound in.

I feel like i'm feral when i sit down at a table: i knocked a drink over.

Next step, getting oriented to her church so i can take her there.

A sense of weariness comes from that trip -- i dunno if it was all physical or grief at seeing her so stoke crippled. She noticed a custom plate on a car at a stop light. It makes me realize how present she really can be. It's hard to know how much is going on in her head, between the aphasia (she can't communicate well) and memory loss (she really can't remember some things, including things where she had such mastery and expertise, and things that happened long ago). When she gives confused responses to questions i know the answer to, i can't tell if it's communication, or if she really didn't remember or understand what happened to her just a few days prior.

Yesterday: a no drama birthday for Christine, who turned off everything and just didn't respond to people reaching out. Yay. Last year was over the top with her sister getting all overwrought.
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Monday, December 13th, 2021 07:28 pm
Sunday - watched the stilt grass smolder as i tried to burn it, but got several beds weeded and repaired. Trimmed out sections of the deer fence where i'd ripped it up with the powerful string trimmer some time back. Noted the MANY places where there were smaller holes.

A view of garden soil, purple mustard, and sign of rabbit visits
Rabbit sign: full resolution image after link for exploring.
That's a rare tulip poplar leaf that has color instead of just looking black and shrunken.


By the time i had my late lunch and cleaned up, it was time to head to my parents' to take my mom to a holiday light show. I made cocoa, Christine prepped cream cheese sandwiches on English muffins, and i fixed up head bands with metallic curling ribbon. The drug store had no festive necklaces or pins or hats or hair bows, so make-my-own was where i was at.

I arrived at Mom and Dad's to find Dad's stress levels through the roof, Mom's cognition very fuzzy. Mom was sundowning and didn't want to go. In the end, we had the little picnic in the living room, and the cocoa seemed to calm my Dad down. It was a good visit, although i certainly had mixed feelings.

Monday:

Rabbit fence research: rabbits can chew through chicken wire as well as my plastic deer fencing. I'm looking at:

GARDEN CRAFT 50-ft x 2.3-ft Gray Steel Welded Wire Garden Welded Wire Rolled Fencing


Then i can use the deer fencing for the height. So far, only one older fawn has made it in. (That fawn threw itself at the fencing and loosened one corner T-post from its clay anchor. Not sure what i am going to do to fix the corner. Probably just move it a bit. I dread pounding the posts back in when it's not been weeks and weeks of rain....)

I dropped everything for morning rituals - the alarm app never went off. I guess i will just try my phone, as unreliability is not helpful. I got distracted after breakfast shelling lima beans that had been caught by the frosts, when my sister contacted me saying our morning plans were dashed due to her builder's need to talk to her. I still went over to visit, then drove to the farm stand in Durham that i was scouting as a festive place to go with Mom or Christine. It failed to meet either set of criteria. And at over half an hour away, not close enough for general visits either.

I've been sort of out of it all afternoon, i'm not sure what i did -- read the news, poked at email. Before dinner Christine was able to wrest the blinds out if the "invisible" brackets and i was then able to mostly fix the pull chain. I need an uninterrupted loop and instead have a loop joined by one of those cylindrical clamps that link ball chains.

My sister has messaged to note it's the third anniversary of Mom's stroke. It's possible that's why i feel so uninspired to do anything. The twice disappointed plans didn't help, even when i note that in both cases i had a better visit than i would have had with the plans.
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Tuesday, November 16th, 2021 08:04 pm
I am in the fuzzy place of "do i have a cold or is this allergies," but I'm not 100%.

I was in a happy place for Tuesday's therapy, and i was asked what had me so happy. New car? Lovely weather? Time with sister? Christine in good cheer?

Christine was in a terrible mood due to Some Other Person when i got out of therapy -- she only just pulled out of her funk well after 5 pm -- and i did find myself feeling more down. Also, strange tensions with my boss as i think he's feeling more uncertain about his role with the recent reorg. So up and down, with some evidence other's moods do affect mine despite my trying to keep a sense of "this is my mood, that is yours."

She ran an errand just as i was taking lunch, and i thought she'd be back, so i sat reading while eating, waiting. I finally went out to get mail at the end of my lunch break and found her sitting in the truck. My waiting wasn't really conscious; i only realized it when i was disappointed. I ended up working late on Tuesday so didn't get outside time. I hope to rake a little during the lunch break today.

--== ∞ ==--

Mom is home from the hospital, and Dad got a shout out in the visit notes, "Lovely husband providing phenomenal home care and support in setting of past CVA [cerebrovascular accident, aka stroke] w/ ongoing deficits."

I observe my mother's voice in my mind, bitterly dismissing any praise of Dad. "He snowed them, fooled them. They don't know him really." So glad that's the only place i hear that voice now. I do wish i could evict it. I used it to bolster my faith in Dad's care, and try to downgrade my worry about the toileting difficulties.

My sister reports my brother is going to help my dad re-structure bits of the house to make things easier for him. This will be fantastic. AND my sister is not going to be angry about my brother keeping his stuff in the house: what a win!

--== ∞ ==--

Kitta grau, the rye sour culture, is being refreshed. In our cold house i am putting the jar of culture on top of a mug of boiling water and wrapping with a towel. I've decided that just in general our house is too cold. Rye bakers probably had a stove that was pretty warm even if their houses were generally colder.
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Sunday, November 14th, 2021 11:45 am
Gah, i wasn't watching the weather. Rains never seemed to come true. Well, finally a freeze. The tomatoes and holy basil are done for. I saw a bee buzzing around the frozen holy basil blossoms and felt sad i hadn't anything to offer it: i'd been delighted earlier in the week at just how many bees congregated around the holy basil.

The weather and the foliage have been glorious the past few days. The woods shimmer with gold and the sky is bright blue. I have not been thinking about watering, and i need to check on a few plants.



Saturday i made some significant progress on inbox-type actions -- the week had felt intense with evening meetings on Wednesday, Thursday (short, as not all were there), and Friday, along with signing and signing and signing for the refinance closure and then - ha! We have a new car! Well, new to us, and more fun than responsible (but better gas mileage than what we had). I told a few people who asked that it is a midlife crisis car. (Although, no crisis here - just at a point where we could have a fun car.)

The car is a Honda Civic SI, with a 6 speed manual transmission, and significantly more interior luxury than any vehicle we've ever had. We h  past the engine and driving experience, so we were pleasantly surprised to find a moon roof and heated seats and fancy phone integrations.

Also Saturday, i dug a trench for putting potted plants in for winter protection. I put some of the natives -- the false indigo, aster, and the mint -- in the ground near the trench, and some i've left in pots, particularly the shrubs. Today i chipped up branches and an autumn olive and put pizza boxes down for a path and covered up with the wood chips. Much weeding, more raking of leaves and mulching. The bearded irises are putting out new growth. Is this normal? I'm trying to figure out how much i can or should mulch them.

Monday is Thanksgiving tamale prep at my sister's.

The damper is that Mom appears to be suffering from Warning: too much digestive tract information ) This all is assuming my diagnosis is right. Dad's taken her to the emergency room; I hope it all sorts out. My brother is in town and so he's gone to the hospital with Dad. I have assured my sister that we don't need to go, too. All evidence points away from something stroke adjacent. And my brother can do some lifting.

We had him over for dinner last night, and it was pleasant to visit. He's not really adjusting to the timezone though. I don't understand how he gets by on so little sleep. I haven't quite figured out his schedule: it seems to be working all Singapore time (over night) and then hanging out during the day with naps.
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Tuesday, October 26th, 2021 06:44 am
Not quite a week has passed since i last wrote.

I've been busy. Part was work in which i was trying to focus and deliver a finished something. Part is the weather has changed and i have worked hard in the yard.

Part is looking at my past with a lens of understanding a little of what ADHD means chemically (a dopamine deficiency) and exploring the idea that i (and my siblings and my mother and my sister's daughter) have ADHD. My brother's eldest son has been diagnosed with it.

Interpreting some of my parents' interactions, my mother's anxiety through the lens of that condition -- so much makes more sense. Mom never went past reading every self help book and diagnosing everyone else: we've all wondered what was at the root of her anger and unhappiness.

Some differences between Christine and i, i see now as having a significant amount of "me ADHD, you not." Christine, i speculate, had assigned them all as "weird things my spouse's family does." Not all of the "weird things" are explained, but it does hit some.

It's been a relief in some ways: things that are struggles and hard might have a reason i find them such a struggle and so hard.

It's also made me aware of hyperfocus and various attempts to get various things done. I a little more aware of not leaving things unfinished. Or leaving them unfinished to move on to the next thing. Of leaving things out and being distracted by them later.

It's like a dimension has been added to my universe, a focus-distraction dimension. It's like a type of gravity, a force that pulls things a certain way. Various aspects of moving about the day i now see as related, not independent struggles or demands.



A view of the north west side of Pilot Mountain with some fall color

I took a road trip Monday with my parents and my aunt. My heart broke a bit over my Mom and her not wanting to get out of the car. There's some ways in which my father and COVID have reinforced her limited horizon and shut-in-ness. I don't know what to think about the "toileting" issue, where i asked and asked, and she declined. I suppose we should have given her no choice at the park and just taken her in. I did channel my sister a little, not giving mom a choice about getting out at Pilot Mountain and i think she emotionally shifted a bit to enjoying it after a bit. But she was also a little anxious and we, as her wheelchair motors, weren't charming as we struggled a bit. If i was her, i'd hate being a burden and would want to minimize it (and thus stay shut in).

I need to keep working on finding things to take Mom to do.

On Wednesday i will go to the art museum with my aunt, sister, and mother. giving my Dad a quick break from my aunt before she returns to Florida. I know her visits are not a break for my Dad but a bit exhausting.

--== ∞ ==--

When i just let the cats and Carrie out into the yard, the sky was sparkling despite the great bright moon lighting up the landscape. I watched a bright satellite cross the sky. Water dripped from the roof: we had heavy rains in the late evening.
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Thursday, September 16th, 2021 06:55 am
Monday night and yesterday a small swirl of uncertainties with Grandmámá, who had stayed in bed and not eaten all Tuesday, but did rally yesterday. Swirl )